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hemophilianewstoday
12 小时
What we’ve learned about obesity, fat-shaming, and hemophilia
Columnist Alliah Czarielle offers insight into how obesity and fat-shaming can affect people with hemophilia, particularly young folks.
hemophilianewstoday
3 天
Navigating the long road to recovery after recent hurricanes
Columnist Jennifer Lynne likens the aftermath of storms like Hurricane Milton to the long road to recovery required for hemophilia patients.
hemophilianewstoday
3 天
Bypassing agent Sevenfact reduces bleeds in patients with inhibitors
Researchers reviewed data from 14 hemophilia patients treated with Sevenfact to better understand its real-world safety and ...
hemophilianewstoday
4 天
Building with Legos in the hospital provided my son connection
Columnist Joe MacDonald reflects on the time he and his son spent building with Legos in the hospital as a distraction from hemophilia.
hemophilianewstoday
6 天
Reimbursement urged in Spain for Hemgenix hemophilia B treatment
Spanish authorities issued a positive recommendation for national reimbursement of Hemgenix gene therapy for eligible ...
hemophilianewstoday
8 天
What does a minor cut do to someone with hemophilia?
One of the most pervasive and amusing misconceptions about hemophilia is that a person with the condition could bleed to death from a tiny paper cut. People often think that those with hemophilia must ...
hemophilianewstoday
10 天
FDA approves marstacimab, now Hympavzi, for hemophilia
The FDA has approved Pfizer’s marstacimab under the brand name Hympavzi for adults and children with hemophilia A or B, ...
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